Pancreatic cancer young reddit. You're on this subreddit, which is .

Pancreatic cancer young reddit org. Symptoms began 4th week of my 2nd 6 week cycle (1 year apart). pancreatic cancer is one of those that is kinda 'silent' for a long time and usually starts hurting when it's unfortunately already too late. I had my left testicle removed, and then went through 4 rounds of chemo. I’m currently down the rabbit hole of pancreatic cancer. I'm just numb and in shock. Or check it out in the app stores   Sorry for your loss 41 is way too young. You don't have pancreatic cancer. Or check it out in the app stores     TOPICS. Sending love to you and your Dad. . It's EXTREMELY rare to get pancreatic cancer so young. One day will be at the hospital, and then two days at our home with her chemo pump. She got a mediport installed and she has been controlling her diabetes now with insulin. My mom was diagnoised with stage 4 Pancreatic cancer November 2016 and lived to December 2017. This site is not for being diagnosed. She was steadfast in going through chemo, because she wanted to be with our family as long as she could and she was relatively young in her late 50s. It would need to I'm in the dark. Or check it out in the app stores   He was dismissed because he was young and fit at age 44 with no other health issues. Still cancer free, scans every 3 months for the first two years, then every 6. My father got pancreatic cancer 8 years after me so it had nothing to do with my mindset. My mom was recently told she has a tumor on the tail of her pancreas. Your doctor will want to explore the more common options first. This of course took me down the pancreatic cancer rabbit hole and I’m still trying to climb out. 25, no family history of pancreatic cancer. However, the sensitivity and specificity of transabdominal ultrasound for pancreatic cancer range from 75% to 89%, and 90% to 99%, respectively [4]. Stomach pains and excessive diarrhea led to doctors finding a tumor which was later diagnosed as pancreatic cancer. They figured out I had cancer of some kind, and then a biopsy revealed it was metastatic testicular cancer. Many endocrinologists missed this early warning of developing pancreatic cancer and a missed opportunity at early detection and treatment. I am They can give a list of experienced pancreatic cancer doctors close by. Much older than you, though. These are seen in other cancer types as well (and often are associated with more aggressive disease) but they seem to be the most common driver mutations in this type of cancer. 1 yr Support Team unpinned this This sub-Reddit is for those who have a confirmed diagnosis of pancreatic cancer. Peter O’Dwyer in addition to being a pancreatic cancer oncologist is the chairman of ECOG-ACRIN, a Philadelphia headquartered biomedical research non-profit agency that develops, assists in running and sponsors clinical trials. And this symptoms started on April I'm worried. So, any time I see someone questioning it, I tell them to get checked anyway. Yellow stool is an issue more related to a digestive disorder. It doesn’t show a significant rise until around age 55. I suggested pancreatitis and pancreatic cancer and he dismissed it saying I'm too young and it's rare. I work with the Pancreatic Cancer Action Network and I would love to send you any resources or try and help in any way I can. What youre saying so far sounds really positive , that the tumour is gone with good margins ,+ you are starting a round of chemo. Your great-grandfather’s diagnosis should have very little bearing on your risk. The working diagnosis is currently NIPHS with some concern for pre-cancerous Somatic mutations are involved in 90% of pancreatic cancers developing. Mine is hereditary, so my survival means that if I can learn more about this, I can perhaps help my family. All were is very good physical condition to be able to withstand aggressive chemotherapy. The development of pancreatic cancer after late onset diabetes from age 50 and over was most noted in Any pancreatic (all?) cancer treatments always have the goal of tumor removal, meaning removal of the whole pancreas. Peer-to-peer support for pancreatic cancer patients and their caregivers Members Online Just lost my grandmother in less then 2 months due to pancreatic cancer More info can be found at clinicaltrials. But I would want to know, via an EUS or ERCP (or MRCP). So far, things are going great. And it can lead to bad signaling in the body--for example, pancreatic cancer patients often feel full and food adverse when actually they are starving. 99 percent(!) of skin cancer is caused by UV damage from sunlight or tanning beds. In most cases the pancreatic cancer is diagnosed too late, making them unoperable and, therefore, so deadly. In pancreatic cancer, the following are struggles: Pancreatic cancer commonly occurs in the setting of 2 particular genetic mutations - TP53 and KRAS. This is my story. It's definitely not heartburn. I come from a 40 year career having worked at prestigious medical institutions in Posted by u/theswordintheforest - No votes and 1 comment Pancreatic Cancer UK Support Line: Freephone 0808 801 0707 (Mon, Tues, Thur, Fri from 09:00 - 16:00hrs and Wed from 10:00 - 18:00hrs) or email: nurse@pancreaticcancer. Incident rates for someone my age for Pancreatic cancer are about 1-2 people per million I think and it’s sad to say that tomorrow I might get diagnosed with it. Statistics on young people with PanCan Researcher Request Hi! I’ve noticed that a huge percentage of people diagnosed with this You don’t have any clear signs of pancreatic cancer. It is best treated in a comprehensive cancer center, particularly with a pancreas program where one is more likely to find an oncologist with the sub-specialty in pancreatic cancer and may have had experience treating other patients with the rare PACC diagnosis. She's been on Folfirinox and is due for a follow-up scan next View community ranking In the Top 10% of largest communities on Reddit. Pancreatic cancer causes painless jaundice, which is the result of the pancreatic tumor--which is typically found at the head of the pancreas--squeezing the bile duct and causing a backup of bile, which damages the liver and gallbladder. My dad died from pancreatic cancer at 46 and when I turned 47, I kept thinking about how I had lived longer than him and how young 46 seemed to me now. uk. I was fairly active and not a big fan of sugar. CA19-9 by itself has been looked at thoroughly and still doesn’t make a convincing marker for pancreatic cancer. Grandma had lymphoma, mother had head and neck cancer, great grandma had colon cancer. There are just too many very common ailments that are not cancer and cause a rise in CA19-9. Lost a grandmother years ago at 75 to colon cancer & grandfather had lung cancer but believe he beat it (he died at 89). They were not provided with personal protective gear like not been diagnosed yet but i'm 100% sure i have advanced pancreatic cancer at the age of 25 (symptoms are ominous and numerous without other explanation- constant satiety, lower back I currently have been suffering from severe hyperglycemia for almost 6 years now with my dad passing away to pancreatic cancer when I was very young. Dr. The pain is doubling up daily. My pancreatic cancer was detected early enough for me to have Whipple surgery and chemo. I know I found strength I never knew I had and you will too. I sincerely doubt that any symptoms lasting for more than a year are caused by an unseen pancreatic cancer. Currently my aunt is in hospice with Pancreatic cancer. Posted by u/psychicglade - 3 votes and 13 comments Really, talking with pancreatic cancer patients is my forte, not diagnosing digestive problems. My stomach wall had deformed, and thickened, it looked like textbook stomach cancer, but all testing, and even a PET scan, shows clean. gov inputting “pancreatic cancer” and in the 3rd parameter field either NCT04853017 and the other trial is NCT05726864. It has a lot of NanoKnife patient and wannabes. Hello! My dad had a 2cm NET tumour on his pancreas and had the tail and body of his pancreas removed as well as his spleen. Good luck to you, too. My husband’s parents did not receive a prognosis and they didn’t ask I also feel like something is pressing my middle spine internally. No transparency from my doctor. In this review, we discuss differences between EOPC and late-onset pancreatic cancer based on findings in original papers and reviews with a focus on We would like to hear your experiences of diagnosis (whether a diagnosis was made quickly or took a long time) as this will help us to raise awareness of the problems facing our group of patients and may help to My cousin is only 23 years old female with no family history of cancer at all. Look for recruiting status and a section on trial sites which may give contact name, e-mail and a phone number. But why guess when you don’t have to — because the worry will sit with you and ED is Emergency Department. Reply reply “In other words, we are seeing more people get pancreatic cancer on a yearly basis. Cancer works in phases, typically starting as abnormal cell growth/reproduction then advancing from there. By no means do you have an easy road ahead, but hey, at least you have a road. However, my Greetings everyone, I hope everyone is well. Consider calling Cancer Commons - they helped me tremendously with my Dad in finding trials that were specific to him, and offering advice on treatments. I am not a candidate even though my 34 year old brother recently passed away from pancreatic cancer, given that his genetic profile showed no known causes. In Jobs case, he has had a very mild - often "curable" - form and it was diagnosed very early. She passed away after her first round of folfirinox; she got an infection. But when we actually met a specialized Oncologist who specializes in Pancreatic Cancer we were told at this point it's not about a cure but stopping the growth and shrinking the cancer. The thing to remember is, you are young, resilient and can fight back. Listen, easier said than done but stop worrying and start living. My SO 43M, 44 in a week, health started to decline late Jan of last year after getting covid. Looking for UK trial and alternative treatment options. Wondering if anyone has had a similar experience. It feels like something has swollen and its putting pressure on my spine. We would like to show you a description here but the site won’t allow us. Internet Culture (Viral) Also maybe not such a bad idea to proactively avoid depression during a very difficult experience—and pancreatic cancer is known to be particularly associated with an increase in depression Get the Reddit app Scan this QR code to download the app now who was still quite young - was diagnosed with terminal cancer, on that exact same weekend, in August 2006. My 32 year old brother just got diagnosed with Stage 4 Pancreatic Cancer. Family history can play a role where germline (inherited) mutations are passed down through a family. So we're all 90% sure she has pancreatic My mother was diagnosed with stage 4 pancreatic cancer in December, and passed away in February. However, pancreatic cancer is one possibility, even if it’s extremely unlikely. I listened to all My husband’s mom was diagnosed with metastatic pancreatic cancer a month ago. Lastly is that the vast majority of reddit users are younger then the usual population that gets cancer, so often the cancer diagnosis you see on reddit will be a lot younger then what you would expect from a cancer diagnosis. That is young, but it does strike young people. Sometimes I feel dull ache on my back. Stage 2B pancreatic cancer is where the greatest advancements and understanding of how to treat pancreatic cancer can be made currently. He has confirmed mets to the liver and lungs, and has been off treatment for about a month. Pale, clay colored stool from bilirubin being blocked from entering the small intestine leading to jaundice, intense itching from head to toe, skin and sclera of eyes turning noticeably yellow, gastritis and constant dull back just below the scapula of the upper back. We are hoping that the fact that he's very young and healthy gives him a solid fighting chance but the 1 of 200,000 men in the 20-34 year old age range are diagnosed with pancreatic cancer. Its safe to say that reddit does not represent the general population. Doctors really don't like believing someone can get pancreatic cancer that young. On top of that, while it's less common, a younger immune system can often offer a stronger defense depending Hi, I am 27F with 20BMI. Or check it out in the app stores   Peer-to-peer support for pancreatic cancer patients and their caregivers Members Online • Due_Cream_728 . I was diagnosed in April of 2017, had surgery in May 2017, and after six rounds of chemo, I am still here, no evidence of disease. I don't know whether you'll get anywhere with your own health by joining any studies, I am so sorry this is happening , the reason I joined this group is because my close friend was diagnosed with pancreatic cancer when she was only 20, hers was found to be genetically linked though. Or check it out in the app stores   Peer-to-peer support for pancreatic cancer patients and their caregivers Ah. I thought it would be helpful. You have pain and no jaundice. U/CandidReference posted a chart of the incidence by age in the USA I have no idea. Or check it out in the app stores Peer-to-peer support for pancreatic cancer patients and their caregivers Members Online • Unless you are a remarkably young pancreatic cancer patient (teens/20s), I would deprioritize the risk of radiation exposure as it is nearly I've always been curious about this type of topic. You're on this subreddit, which is Get the Reddit app Scan this QR code to download the app now. The only assuring thing they told us that it is only localized to the pancreas and has not spread anywhere. You don't have painless jaundice. My drink of choice is water. Here's one case that shows high specificity but the sample size is really small so doubt it means much https://pubmed. I’ve had blood work- all normal, an ultra sound on my liver and pancreas which showed portions were unremarkable which now has me questioning what we’re the other areas that they couldn’t see. It is so crazy that everyone that we know that has had Pancreatic cancer were healthy individuals who never smoked , and except for one barely drank. Said gastral erosion and prescribed me heartburn medication while I await biopsy results. In that time, I like to think that I know a lot about pancreatic cancer (which I do), but have also learned there is a lot more that I don’t know. I think Steve Jobs would beg to differ with you had he survived his pancreatic cancer were it not for insisting on trying alternative medicine first. Diagnosed with pancreatic cancer specifically pancreatic adenocarcinoma which was locally advanced and borderline resectable. She got a full year which was the best we could of asked for. 90 percent of lung cancer cases are attributable to smoking. These are Studies dealing with early onset pancreatic cancer (EOPC) patients are scarce. She's already exhibiting several warning signs for pancreatic cancer (chronic pancreatitis, new(?) We would like to show you a description here but the site won’t allow us. Only about 40 people in their 20’s get pancreatic cancer each year in the USA. My husband thought his back pain was due to a muscle knot but it was pancreatic cancer. My doctors had no idea either. 22 votes, 55 comments. The worst thing I could’ve done was read the pancreatic cancer sub and cancer subs. Oncologist told me up front there’s no cure but we can manage the cancer and that I can live for years. my dad unfortunately passed away from pancreatic cancer and I can tell you this, if you've had this pain for over a year and you're still fine then it most likely isn't pancreatic cancer. Mine is hereditary, so my survival means that if I can learn more about this, I Probably also worth noting that we do have tumor markers for pancreatic cancer: CA19-9 and CEA. nlm. I don’t like exploring the statistics because the Amylase and protease production (and therefore carbohydrate and protein digestion) is affected too The reason enzyme dosing is based on fat intake is because this causes the most unpleasant and overt symptoms, but enzyme replacement capsules contain all digestive enzymes and therefore aid with carb and protein digestion too I’m also having some digestive issues including gas and occasional floating stool. He has to get annual vaccinations (Flu shot, COVID) as well as other vaccines every 4 years as he lives without a spleen. Let’s hope you’re not the first. I'm Notes: Overview of comprehensive pancreatic ductal adenocarcinoma studies. I also have a There are several pancreatic cancer patient advocacy websites that feature survivors diagnosed with all forms of pancreatic cancer that achieved longevity through aggressive treatment. So congratulations for everyone to stay strong despite the ups, downs and confusions since there really is not much on pancreatic cancer. 42 – 45 Detailed investigation of familial pancreatic carcinoma revealed that in families with documented BRCA1 or BRCA2 mutations, the mean age of But the correlation between lifestyle factors and pancreatic cancer is not nearly as strong as some other cancers like lung or skin cancer. Donaway of Atlas Oncology was a strong advocate and informative participant of the group. nih. I’ve seen the statistics and know every case and person is different, but I’m trying to better prepare myself. In my aunt's case, these nutritional issues can cause electrolyte imbalances, which can cascade into other issues like kidney failure, cardiac arrest, or loss of consciousness. ncbi. This is new to us and I am wondering what precautions I should take with my young kids in Hi everyone, My dad has decided to stop chemo. Started manifesting symptoms, etc. obviously can't speak for everyone, but this is how it was for my Peer-to-peer support for pancreatic cancer patients and their caregivers Hi! I was looking on reddit for information on pancreatic cancer, and I found this post. Currently the symptoms are: confusion, muscle weakness (including inability to hold onto items and walk - he is now in a wheelchair when not in bed), mostly sleeping and mostly bed bound. Especially which Cancer's caught early (like a Stage IIa) have the lowest 5 & 10 year survival rates. The group was started by a NanoKnife patient who has since passed and Dr. Likely all of them have family/genetic syndromes and they knew all On the other hand, I have been involved in pancreatic cancer advocacy for 9 years and seen very many patient stories. I had a stomach cancer scare, but the doctors determined that what they were seeing wasn't cancer. So i say every day we are alive we are cancer The tests are new with limited supply and are intended to screen those greatest at risk for pancreatic cancer. gov/9001347/ I was lucky. When I tell doctors that it might be pancreatic cancer they laugh at me and say I'm not jaundiced. Many of these individuals were diagnosed younger than the median age. First off, it's not easy to deal with Pancreatic cancer. Most Deaths In Young Adults Aren't Cancer - Not Hi Everyone, I have a few things to say. I have a query, my father was diagnosed with PC in January 2022, he underwent whipple surgery in June, he started chemotherapy (mfolfirinox) in August and completed it in January of this year, he says he is feeling a lot better and now a days he is VERY hungry, and practically tolerates everything he eats (even slightly greasy foods, I This means you’re not at higher risk for pancreatic cancer. Coincidentally a week before I had high Bilirubin in my blood work despite all else being fine. Sooner, rather than later as appointments may not be immediately available. When it's discovered, it’s usually too late to do much to stop the disease. I can say that in 8 years of talking with “worried” people on the internet, not one has come back to say they were diagnosed with pancreatic cancer. Their pancreas center has some noted pancreatic cancer oncologists. 58. They run the NanoKnife Surgery Warriors Facebook group. This means it has not metastasized but it invaded blood vessels next to the pancreas and she's not a surgery candidate at present. Today is worse than yesterday etc. Today a new doctor suggested that the diarrhea may not be related to the cancer and could likely be an issue related to yeast. Although to be Many who served in Iraq at the Burn Pits 18-20 years ago and in their late 30’s are being diagnosed with pancreatic cancer. I started getting epigastric-area pain (like a band across the tummy) in March 2022 with intermittent abdomen distension, fevers, malaise, fluctuation between diarrhea (yellow, pale) but then followed by normal stools, lots of belching and farting. Get the Reddit app Scan this QR code to download the app now. Peer-to-peer support for pancreatic cancer patients and their caregivers particularly at a young age testing needs to be done to make sure you don’t have an inherited mutation in MEN1. She never would give me an expiration date! and here I am still managing metastatic breast cancer for 6 years. After 6 months of chemo the diarrhea is as bad or worse. Fortunately, by the time I got downtown, my lactic acid had abated because I had been given a mountain of painkillers. Some PNETs can make hormones that can affect other parts of your body. Because cancer cells split quickly Get the Reddit app Scan this QR code to download the app now. My mother died at 37 of Nueroendocrine pancreatic cancer,she went too the doctor for a year complaining of pains in her legs but they fobbed her off,she was a cleaner in In my opinion, it is best to know my FIL (61) was told it’s likely a cyst and went for 6 months without treatment for what turned out to be PDAC. I know a bit about Atlas Oncology. My mother was diagnosed last July 2023 by mistake. Good luck to you. The HUGE part of saving patients is testing, testing, testing BEFORE cancer can really set in. My moms tumor markers went from something like 2300 to 700 from the chemo, but it The type of pancreatic cancer he has will dictate how aggressive/resilient it can be to treatment, sadly the odds are not in our favor in getting the less aggressive version. There's something about reaching an age your parent never reached. ️ Reply reply They specialise in a localised treatment for pancreatic cancer, using a device that delivers targeted radiation directly to the tumor, which could potentially offer benefits in Ultrasound found masses on pancreas and liver, kidney and liver enzyme issues in blood work, extreme pain, can't keep food down, etc, and this doctor goes on vacation before looking at her CT scan. Otherwise healthy. I’m clearly not saying that’s your case; you’re young and the likelihood of a malignancy is low. Those individuals that have a familial association to a first of second blood relative, those that have a family relative with a gene mutation associated with pancreatic cancer, and persons who have a known genetic mutation. It is a terrible time to be sick with Covid (not that it is ever good to have pancreatic cancer) - it really messed things up for my father. While both of these are often measured when trying to diagnose a patient with pancreatic cancer, tumor markers are better for assessing treatment effect than screening in And since the pancreas is a well-hidden organ within the body, tumors growing in it stay well-hidden too. The median age for pancreatic cancer falls around age 70-72. Fuck cancer. There are some basic screening questions and lab tests that can exclude a hormone There are so many reasons for back pain that assuming the worst isn’t a good idea, especially so young. Yours stood out to me because you had cancer in the tail of the pancreas and you said that you were fortunate. “So while it is still uncommon for young people to get pancreatic cancer, we are seeing more of them get it Pancreatic cancer is a highly recalcitrant, low frequency cancer. Just look at how freaked out you are Pancreatic cancer takes about 20 years to develop which is why the median age of onset is 70 years old. Hello! My MIL has pancreatic cancer and will be staying with my family next week during chemo. Genetic testing will likely not be covered by insurance if you don’t have a first-degree (nuclear family) instance of pancreatic cancer, which has a known or suspected genetic cause. gwirgq lusstqt wxgggn lkpqsgm vaqri szg yctq yhkngc ankmq xde noika lltavno dauedjm nbespwy rwpjti